Thursday, February 27, 2014

All's well

So my computer decided to crap out so haven't updated in a bit. Last oncology appointment was good. Dr is very happy with how I am recovering and feeling. Was quite impressed to hear I was back to the gym and resuming a pretty normal life. I am very fortunate to feel so good so fast, and taking advantage of it!
We have decided to do a few more ct scans over the next while just to check on things. My next one is the end of March after spring break. They wanted it done right before and I didn't want to spend  vacation fretting about scan results! So I will enjoy vacation and then go through the scanxiety!
So all is well, working on getting rid of the extra weight I gained during chemo and being healthy!

Monday, February 3, 2014

Endo update

Ok, ok, ok... a little late with the update from my endocrinologist, but late is better than never!

So I had a really good discussion with him. Spent 45 minutes talking and figuring out what was the best thing to do for me and my situation. Because I am still so young, we decided on a cyclic hormone replacement therapy. It seems to be the best thing for me. Dont have the same risks I would have if I was taking it all the time. Seems this way is healthier for the body when it should still be functioning properly and ovaries are intact. So for 25 days I take an estrogen pill, then on days 16-25 we add progesterone, stop day 26 and start again on day one. I am just going to follow the calendar days as that will be ok according to the doc and easier to remember when to take what!

So thats all for now, see my regular oncologist on Friday so will check in next week with that appointment!

Friday, January 24, 2014

6 months post transplant and we have some fun!!

Sure, fun, that is what we will call it...

As some of you may not know all that happens during a stem cell transplant, the outcome is your immune system is wiped out and rebuilt... guess what happens when you wipe out a previously immunized immune system...

you got it... you have no immunizations left in your system!!

So yesterday was the first series of my immunization... 4 shots total, 2 in each arm... I can really feel for babies right now I tell ya. After all the needles and crap I have been through the shots themselves were fine. Barely felt them. The after affects of them is another story. My poor arms hurt so much I cant lift them up!! No wonder babies scream, lol...

But this is just another step in the journey of rebuilding so it is what we must do... not looking forward to 5 of them next month though!!

Other than that all is going well, I will update after my appointment in vancouver with the endocrinologist on monday to fill you in on that aspect :)

Thanks for sticking through this with me... if there still is anyone, lol...

Sunday, January 5, 2014

Getting back to 'normal', if there is such a thing...

Ok, Ok, I admit, I am really bad at this blogging thing... i will try to be better but I find it hard sometimes, or just dont know what to write anymore...

So I will start with the fact that I had a great holiday with my family and friends, happy kids are going back to school tomorrow so I can work on getting me back into routine. Tomorrow morning i am going to go back to the gym, not sure how well I will do but its something I have to get back into as I do love it. I have also starting making green smoothies for breakfast and yoga dvds when I squeeze them in. I am trying to recover and be as healthy as I can, but still enjoy the finer things in life like wine and chocolate, lol...

On the medical side all is pretty good. I am now in menopause from the transplant so that is adjustment at 33 years old. I have an endocrinologist who I see later this month to discuss my options on this front.

My hematologist who has seen me since my relapse is very happy with how I am doing and transferred my care back to my primary oncologist, woohoo!!

Other than that things have been good and just adjusting back to life and having to remind myself it ok to be tired some days as my body did just go through hell and back!!