WOOHOOOOOOO!!!!!
1/4 of the way done my treatment. Each treatment is a step closer to being rid of this nastiness inside me. Bring it on!
As for the treatment itself, it went pretty good. The 'D' drug is the one that gives me trouble with pain, so we mixed things up a little today with the hopes of no pain in a week. Only time will tell. Lots of saline with it again, so im nicely hydrated :)
The fatigue truck hit sooner this time. Started to feel tired during treatment. The nurses are amazed I don't fall asleep, im thinking it may happen one day. Guess the affects of fatigue hit you faster with each treatment.
Well thats about all for now... im tired...
Wednesday, August 31, 2011
Tuesday, August 30, 2011
Getting ready for #2
Tomorrow morning is treatment #2. Not too worried about it as I now know what to expect.
Decided to go even funkier with the hair, as body hair is starting to go already. I was a little surprised, as it happened a couple days earlier than I expected.
On a positive note, the arm pain has subsided quite a bit... painkillers help lots for when it hits though!
Its nice to know that my head isn't funny shaped!!
Decided to go even funkier with the hair, as body hair is starting to go already. I was a little surprised, as it happened a couple days earlier than I expected.
On a positive note, the arm pain has subsided quite a bit... painkillers help lots for when it hits though!
Thursday, August 25, 2011
On the upswing!!
WOOHOO!!!!
I have energy again!! It is so nice to be able to get off the couch and do things. I am still taking it easy, but not feeling like the walking dead is wonderful, and I will enjoy it as long as I can!
The last 3 days have been pretty busy for me, playdates for the kids, some park time, and we even ventured to walmart after I saw the DR today (more on that soon). We were out for about 3 hours and I actually felt good the whole time. Im a little tired now, but I guess thats to be expected. Spent 4 hours at a friends house yesterday and the kids had a blast in the pool and on the trampoline. Im very fortunate to have some people in my life reaching out right now. Its wonderful!!
Ok, back to the dr. thing. For the past couple days my arm (the IV one), has been hurting. The pain started to spread and get more intense so I called the lovely onc. nurses, who didn't have much to say besides call your GP, they might be able to figure it out. So I went to my wonderful GP this morning, explained the pain. She checked for obvious signs of infection or reaction and saw none. |So we still don't know 'what' is causing the pain, but we think its chemo related. Almost feels like nerve pain, so who knows. So the solution for now is to treat the pain. Let the onc people know on my next visit whats up!
Hopefully the pain wont stay too long, its my right arm and im right handed... it does cause a bit of a problem I tell ya!! Next infusion they can bully the left side!!
I have energy again!! It is so nice to be able to get off the couch and do things. I am still taking it easy, but not feeling like the walking dead is wonderful, and I will enjoy it as long as I can!
The last 3 days have been pretty busy for me, playdates for the kids, some park time, and we even ventured to walmart after I saw the DR today (more on that soon). We were out for about 3 hours and I actually felt good the whole time. Im a little tired now, but I guess thats to be expected. Spent 4 hours at a friends house yesterday and the kids had a blast in the pool and on the trampoline. Im very fortunate to have some people in my life reaching out right now. Its wonderful!!
Ok, back to the dr. thing. For the past couple days my arm (the IV one), has been hurting. The pain started to spread and get more intense so I called the lovely onc. nurses, who didn't have much to say besides call your GP, they might be able to figure it out. So I went to my wonderful GP this morning, explained the pain. She checked for obvious signs of infection or reaction and saw none. |So we still don't know 'what' is causing the pain, but we think its chemo related. Almost feels like nerve pain, so who knows. So the solution for now is to treat the pain. Let the onc people know on my next visit whats up!
Hopefully the pain wont stay too long, its my right arm and im right handed... it does cause a bit of a problem I tell ya!! Next infusion they can bully the left side!!
Saturday, August 20, 2011
Quick update
cause thats all I can manage right now. I am still alive and kicking... well, not kicking thats for sure. Holy shit is all I can say about this fatigue! I was expecting to be a little tired... I was not expecting this. I kinda feel like the walking dead. But my mind is there... its up and ready to go and my body is not into responding at all... bummer dude...
On a positive note we had my sons birthday today. It was a nice and small family affair which was perfect. Since apparently me sitting on my ass doing nothing wears me out!! Ok, enough now. We did have a great party, the kids had fun and he got spoiled!
Now... this does get better right? The truck will back off of me at some point?
I sure hope so... goodnight :)
On a positive note we had my sons birthday today. It was a nice and small family affair which was perfect. Since apparently me sitting on my ass doing nothing wears me out!! Ok, enough now. We did have a great party, the kids had fun and he got spoiled!
Now... this does get better right? The truck will back off of me at some point?
I sure hope so... goodnight :)
Wednesday, August 17, 2011
1 down...
Today was my first chemo... yeah for starting!! As you might be able to tell since i am on the board already it went pretty good. They have me on 3 anti-nauseants and a 4th to take if I get any of that 'breakthrough nausea'. So far my head feels a little foggy and im getting a little tired.
Had a wonderful nurse this morning as well which helped lots. Had some stinging issues with the last drip but then they figured it was more concentrated than they usually do it so just had saline at the same time and all was good.
The nurse said I had enough fluids to last the whole day, lol.
I ate a lite lunch, and hope to eat dinner as well... not really hungry though, probably all the fluid they gave me!
Now I think it may be time to sit back, sip some apple juice for that dry mouth I feel a coming on, and read some of my book.
If I can feel like this all through treatment, im set!!
Had a wonderful nurse this morning as well which helped lots. Had some stinging issues with the last drip but then they figured it was more concentrated than they usually do it so just had saline at the same time and all was good.
The nurse said I had enough fluids to last the whole day, lol.
I ate a lite lunch, and hope to eat dinner as well... not really hungry though, probably all the fluid they gave me!
Now I think it may be time to sit back, sip some apple juice for that dry mouth I feel a coming on, and read some of my book.
If I can feel like this all through treatment, im set!!
Monday, August 15, 2011
Can you say STRESSED!!!
OK, I'm a little stressed... to put it mildly that is. I start my treatment in 2 days, so I'm freaking out. I almost wish it had been something where they diagnose you and bam you are in treatment. All this waiting around is making me go insane!
The more time that goes by, the more crap I read on the Internet. Sure its a great fountain of information, but i am thinking that maybe there is too much information out there. I have joined a couple for forums, which are great, they really are, don't get me wrong. But one of them really gets to me some days. I am just started out on this "adventure?" and there are so many unknowns in my future. Then I hop over to the message boards to see whats going on and the reality of what could happen jumps out at me. People who lost their fight with this stupid disease, people who relapse, have complications... it goes on and on... and frankly it scares the shit out of me.
I have now tried to start picking and choosing which posts I read, but its hard. I am very curious by nature and like to know everything going on... this does not help with the stress of my situation!
Its hard to believe I feel like this now when I haven't even started treatment... how will I feel during? After? What the hell does the future actually hold for me?
Sometimes the anger comes out. My wonderful family Dr. tells me that is good. She would be worried if I had no emotions at this point in my life... since we have come to the conclusion I am a very emotional person (might not have been suffering depression after all!!) So I guess it is OK to be angry, sad, frustrated... and so on...
But why do I feel I always need to happy mask on? I am not at all pleased about this current situation, but will try to pretend I am... now I wonder for whose benefit? Mine? My family's? My friends?
I DON'T KNOW!!!
Yep, I'm STRESSED !
The more time that goes by, the more crap I read on the Internet. Sure its a great fountain of information, but i am thinking that maybe there is too much information out there. I have joined a couple for forums, which are great, they really are, don't get me wrong. But one of them really gets to me some days. I am just started out on this "adventure?" and there are so many unknowns in my future. Then I hop over to the message boards to see whats going on and the reality of what could happen jumps out at me. People who lost their fight with this stupid disease, people who relapse, have complications... it goes on and on... and frankly it scares the shit out of me.
I have now tried to start picking and choosing which posts I read, but its hard. I am very curious by nature and like to know everything going on... this does not help with the stress of my situation!
Its hard to believe I feel like this now when I haven't even started treatment... how will I feel during? After? What the hell does the future actually hold for me?
Sometimes the anger comes out. My wonderful family Dr. tells me that is good. She would be worried if I had no emotions at this point in my life... since we have come to the conclusion I am a very emotional person (might not have been suffering depression after all!!) So I guess it is OK to be angry, sad, frustrated... and so on...
But why do I feel I always need to happy mask on? I am not at all pleased about this current situation, but will try to pretend I am... now I wonder for whose benefit? Mine? My family's? My friends?
I DON'T KNOW!!!
Yep, I'm STRESSED !
Tuesday, August 9, 2011
Getting closer...
I am also finding lots of great websites and groups with people just like me. I find this very helpful right now. Its nice to know your not alone!!
Saturday, August 6, 2011
Chopped the Hair
Well I chopped off my hair... a little early I know, but it was really the only time I could get it done before I start treatment. It is short and spiky, kinda cute. I also have some funky colors I am currently playing with. If I ever figure out how to post pics to the blog you may see the before and after pics!!
Surprisingly enough, thats all I have to say :)
Surprisingly enough, thats all I have to say :)
Wednesday, August 3, 2011
Back from Vegas... back to reality
Well I must start off saying that my hubby and I had a wonderful time in Vegas. One week with no kids and no worries is just what was needed right now. We spent a lot of time at the pool just doing nothing. Having nothing to think about for a week was pure bliss, of course now it back to reality.
Ahhhhhh..... wish I could go back tomorrow.
So I have dates... they are coming soon and starting to freak me out a little. My son's birthday is 2 days after my first scheduled treatment. His party is planned for the 3rd day after. I hope treatment goes well or my hubby has a party to put on!!
I say first scheduled treatment because I meet with a new onc the day before. I guess they will be caring for me during treatment since I am being treated at a different hospital (different city) than my original onc. Really not sure whats going on there. So anyways, I meet with s/he the day before, and if they clear me then I start the next day.
On tuesday I get to go to an information session on chemo. I hope it will be informative and helpful but who knows... I was just told to show up.
On a weird and almost humorous note, I received mail from the cancer agency while I was away... it was a prescription... kind of blew me away that they would just send me a prescription in the mail with no note or anything!! So I got them filled and the nice pharmacist was able to fill in my blanks... my anti-nauseants and a steroid type drug. I take them before chemo and every 12 hours after as needed... I hope it can be as little as possible.
Ok, now that I feel I have written a book I am saying goodnight...
Ahhhhhh..... wish I could go back tomorrow.
So I have dates... they are coming soon and starting to freak me out a little. My son's birthday is 2 days after my first scheduled treatment. His party is planned for the 3rd day after. I hope treatment goes well or my hubby has a party to put on!!
I say first scheduled treatment because I meet with a new onc the day before. I guess they will be caring for me during treatment since I am being treated at a different hospital (different city) than my original onc. Really not sure whats going on there. So anyways, I meet with s/he the day before, and if they clear me then I start the next day.
On tuesday I get to go to an information session on chemo. I hope it will be informative and helpful but who knows... I was just told to show up.
On a weird and almost humorous note, I received mail from the cancer agency while I was away... it was a prescription... kind of blew me away that they would just send me a prescription in the mail with no note or anything!! So I got them filled and the nice pharmacist was able to fill in my blanks... my anti-nauseants and a steroid type drug. I take them before chemo and every 12 hours after as needed... I hope it can be as little as possible.
Ok, now that I feel I have written a book I am saying goodnight...
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